What's new?

Adia is doing great and is such a joy to us. She is a little ball of smiles and we are so thankful for her to be in our home.

She started eating a lot more this week......she was eating one Stage 1 food three times a day and all the sudden she is eating a Stage 3 AND sometimes and extra a Stage 2 three times a day!! She has to be hitting a growth spurt. Go little Adia!

In regards to her treatment... I have a ton of stuff coming up to take her to that the Neurologist ordered.

Physical Therapy

Speech and Language Evaluation

Occupational Therapy

Ophthalmology Consultation

ADOS Testing (Developmental Testing)

Hearing and Audiology testing

MRI Scan on her brain

Adia was also accepted into The Regional Center of Orange County program and we have her first in home session this month. She has also been referred to California Children's Services and might have some of her therapy taken over by them.

It is kinda confusing keeping track of all these different organizations we are dealing with now. Between our Family Dr. , Insurance Therapy, OC Regional and now CCS it is going to take a lot of organization to keep this all together. So far my binder is working great and keeping my head above water so far :)

We have our 3 month post placement that needs to be done with a social worker this month as well....so, that will be interesting. :) But, we trust they will see how happy and attached Adia is to us and us to her.

We are shooting a wedding and about 4 to 6 family shoots this month as well. We are thankful for our photography business and how it is so consistent. We work it around our family and the extra income is great for us! We are thankful!! We are busy!!

Madison is doing great with Adia.....over all she plays really well with her and uses the sweetest tones when talking and playing with her. She tells me everyday that she loves her baby sister.

So... we are hanging in there, feeling great and resting in Christ. He is good to us and we go forward with this journey full of prayer!

Pumpkin Patch Fun

Diagnosis.....

Today I took Adia to see the Developmental-Behavior & Neurological pediatrician at OC Kids. It was such a nice place and I was very happy with Dr's and time they took. We were there with the doctor for over 2 hours going over everything about Adia. It was so refreshing to feel a Dr actually care about Adia and really want to make sure she is getting proper care.

When the Dr stepped out I snagged these.... :)

I was excited to see Adia gained a bit of weight...she is 14lbs 2oz! Now for head, height and weight she about in the 2 percentile across the board on American charts.

Being that we know nothing about Adia's history, they can not tell the reason, of course....but, as of now they would diagnose Adia with having an injury to the right side of her brain causing a " left hemiparesis with posture of the left arm". Basically.... Cerebral Palsy that effects her left part of her body. They are wanting to do more testing on her to rule out other things and need to do an MRI to see if they can see an abnormality in the brain. They are uncertain on how this will effect Adia as she gets older....if it is indeed Cerebral Palsy, the injury is done and will not worsen, but, we still dont know how this will play out as she develops and how much physical therapy she has/responds to.

They said Adia will need to have physical, occupational and possibly speech/swallowing therapy. I will continue to take her where she is getting PT now and they want to get it switched over to a Regional Center where all the therapy will come to our house.

The Dr's were very encouraged and impressed with her cognitive and social abilities and said they don't think there are any issues there. They also said the fine motor skills on her right side are very good and both of those things are GREAT news. :)

Adia was such a little trooper with the Dr's. I gotta give Madison a lot of credit too....she goes with me to all Adia's appointments and sits through her therapy sessions.... :) Good big sister!

I now have a binder with dividers so I can keep track of all Adia's notes, therapy and Dr visits!

We love Adia and are thankful she is with us. God is good and He is in control of ALL of this. We have lots of peace about it and are chugging along and just making sure we get Adia all the care she can. God is working according to His goodness and we take complete comfort in knowing He ordained Adia for our family!

She's on the move....

All the sudden Adia is on the move scooting from room to room. It is adorable. She loves exploring and following us around. We went to her 3rd PT appointment this week where they continue to work on her leg, foot and arm. She told me they might need to brace/splint her leg and even her arm, so we will see. I am waiting to get a call back from the other therapists that have been referred and we have an appointment with the pediatric neurologist this next week.

Adia has started waving hi and bye....it is too cute for words so I had to show you here. Also, this will show you how she uses her right side of her body compared to her left. She is happy and tiny, but she is eating and looks healthy to me :)

Madison is still doing really great with her....is still excited and loves playing with her and helping me take care of her. Of course... Jonathan is in love with her too!

We continue to seek God for strength to be faithful parents that teach them about the gospel and all other things that matter in this life :)

PT appointment #2

Elenor ( Adia's PT) worked with her again today. Went through a check list trying to understand the degree of Adia's condition. She saw a lot of positive signs of things Adia can do or almost do...but also told me she was concerned when I told her that Adia will stop and cough often when she is drinking her formula (also when I told her she had not gained any weight). So now Elenor wants Adia to get checked out by another PT....I forget the name of this one, but they specialize in swallowing, reflux, speech, etc. She just wants to have her looked at to see if the coughing is a sign of concern or not. Just get that out of the way. So we will be setting that up too.

I am gaining a huge appreciation for Physical Therapists.....there are ton of people in there getting treated and worked with. The progress people have told me about when their babies needed PT is encouraging!

She gave us some work sheets of exercises to do with Adia.....the ones with her feet being the most important.

Along our path we walk..... :)

Operation Chubber Chunk begins...

I took Adia to her 9 month check up and she has not gained any weight! I was shocked. She is still 13 pounds which puts her in the negative 3% in her weight. She is 27 1/4 in her height (50%) and 5% in her head circumference.

The Dr. told me this is not something to worry about just yet as she has not been on solids for too long and still getting used eating larger amounts, but she did give me ideas on what I should do to get her eating more calories. So....now our little Adia is in full Operation Chubber Chunk until she gets to a healthier weight!

She is so little.....cute and full of smiles.

Tomorrow I start her physical therapy appointments .... 2 times a week! We are going to be busy getting this little girl taken care of :)

Physical Therapy Appointment #1

We had our first physical therapy appointment for Adia.

The therapist said that at some point, in the womb or out, she incurred an injury to her central nervous system. This is why the left side of her body is affected and has the indicators that we have been seeing. She said Adia seemed bright and very aware, so we would not be able to see if she has any mental issues until school age. She wants Adia to see an Occupational therapist for her left arm as well.

I asked if this could affect her ability to walk and she said yes, BUT, there is a lot that can be done to help her at this point and as we still don’t know the full extent of her condition until they do more therapy. She could possibly need to have a brace on her leg and things like that. As for now, she wants to start working with Adia 2 times a weeks to strengthen the muscle around her abnormal muscle tone and avoid any further stiffening in her foot. They really want to get her sitting up on her own.

We also have an appointment in 2 weeks to see a pediatric neurologist to see what they might diagnose or suggest for her.

Adia is so happy and such a joy. We are so thankful God put her in our family and we trust God will give us the grace to get through whatever she needs. She fits perfect with us and is loved tremendously.

God is good to us!

Keep us in your prayers for wisdom for her treatment and provision for the cost of her therapy. Thanks guys!

P.S. She has 2 bottom teeth now and does this funny half body army crawl around the floor. Smiles all the day long!